Resources for Postpartum Psychosis

IMMEDIATE HELP & CRISIS LINES

If you or someone you know may be experiencing postpartum psychosis or any mental health crisis, please seek help immediately. No matter where you are in the world, you can use Find A Helpline for free support anywhere, anytime. 

 

If you are in the United States or Canada, these are a few helplines you can use:

 

If you are in the UK, these are a few helplines you can use:

  • Mind's perinatal support line on 0300 102 1234
  • Text SHOUT to 85258
  • National Suicide Prevention Helpline UK on 0800 689 5652 (6pm to midnight daily)

 

For partners or family members - with help, your loved one is going to be okay. This is a highly treatable condition. After seeking emergency services, consider advocating for perinatal psychiatric units if they are in your area. 


UNDERSTANDING POSTPARTUM PSYCHOSIS

The Postpartum Psychosis Fact Sheet from the Maternal Mental Health Leadership Alliance contains a great overview of facts, symptoms, and resources for postpartum psychosis. The PDF was published in 2022 and spotlights how a woman is 23 times more likely to experience psychosis in the month after childbirth than at any other point in her life, and how half of those who experience postpartum psychosis have no history of mental illness. It outlines core symptoms of postpartum psychosis including:

  • Delusions or strange beliefs
  • Hallucinations where you see, hear, smell, or touch things that others don't
  • Irritability, paranoia, and mood swings
  • Hyperactivity and unusual behavior
  • Sleep problems
  • Thoughts of death, or death-related delusions

 

Postpartum Support International (PSI) has robust resources for families navigating mental health struggles. They are a US-based non profit with global membership. They have many resources, support groups, and a peer mentor program. Their postpartum psychosis page has additional psychosis related information and resources as well. 

 

Action on Postpartum Psychosis (APP) is a UK-based charity that supports families impacted by postpartum psychosis. They have great programming and events in the UK, as well as resources to educate families impacted by postpartum psychosis.

 

If you'd like to learn from and connect with other survivors, consider a PSI support group, PSI Peer Mentor program, the Postpartum Psychosis Forum on Facebook, or watching this Video Journal of Survivor Stories. Also tune in to this podcast and consider joining our Patreon for access to our Discord channel.

 

For providers treating patients with psychosis, consider utilizing the MGHP3 Consultation for Providers to understand current research and treatment protocols. Survivors or their families can also point their providers to this resource, as well as this Discussion Guide Resource from PSI to track symptoms and facilitate patient and provider conversations. 


CONTRIBUTE TO RESEARCH

Contribute to ongoing research! Massachusetts General Hospital is a hospital affiliated with Harvard that is actively publishing and conducting research on postpartum psychosis. They have ongoing needs for survivor participants - learn more and become a research participant with MGHP3

 

National Centre for Mental Health (NCMH) is a hub for research on mental illness, including postpartum psychosis, in the UK. Join as a participant to contribute to improved understanding about risk factors, causes, and treatment best practices. 


SLEEP & SELF CARE STRATEGIES

If you've experienced postpartum psychosis, you may have a solid appreciation for the power of sleep! If you find yourself wanting to improve your sleep, consider these strategies: 

 

  • Ideal basics: Keep your evening routine calm, avoid large meals before bed, and keep your sleep environment cool, dark, and quiet.
  • Cognitive shuffling: To help with falling asleep, think of a word (e.g. STAR) and cycle through 5+ unrelated words for each letter (e.g. S - starfish, sun, salad, south, satchel. T - truck, tangerine, tonsil, towel, to, etc.).
  • Light therapy: Get exposed to natural sunlight or a 10,000 lux light therapy lamp in the morning, and again in the evening before sunset.
  • Physiological breathing: Inhale fully, “top off” breath with a second inhale, then slow exhale.
  • Grounding with cold water: Splash cold water on your neck and face, or simulate a cold plunge of sorts by immersing your face in cold water. This can activate the parasympathetic nervous system through the vagus nerve, creating a calming effect.
  • Journaling: Write about things that are on your mind! It's like free therapy, and can support mental and physical wellbeing.

 

If you aren't already, discuss sleep struggles with your healthcare provider. They'll be able to do bloodwork and other tests to determine if supplements or medication could help. For more information on ways to improve your sleep, the Huberman Lab has some great resources on sleep.

 

Remember - we all need breaks. Make room for mom breaks that fill your cup. ♡


DONATE & ADVOCATE

Mind the Gap is a US-based fund to drive research and increase awareness and access to prevent, educate, screen, diagnose, and treat perinatal mental health disorders for pregnant and postpartum women and their families. Consider making a donation to Mind the Gap

 

Support this podcast by sharing your story or expertise on the podcast - please fill out this interest survey or send us a note at hello@mombreakspodcast.com. You can also support through our Patreon! Any support and participation is so appreciated.


MEDIA ON POSTPARTUM PSYCHOSIS

Too often, postpartum psychosis only appears in headlines with the rarest and most tragic outcomes. In reality, most survivors do not harm themselves or their babies, and the illness is highly treatable. View our list of media that goes beyond the infamous cases, sharing honest, varied experiences of postpartum psychosis. By amplifying these stories, we can reduce stigma and show the many paths to healing.


ADDITIONAL RESOURCES

Perinatal Mood and Anxiety Disorders Fact Sheet - Resource from PSI to understand the various mental health disorders that can surface in the perinatal era (pregnancy and postpartum). 

Postpartum Depression versus Anxiety - Article from MGHP3 about the overlap and distinction of depression and anxiety in the perinatal period.

Perinatal OCD Fact Sheet - Overview of perinatal OCD.

Understanding Bipolar Disorder - Site that aims to educate on bipolar symptoms and treatment.

Fourth Trimester Fact Sheet - PDF with resources on navigating care and resources for transitioning from pregnancy to postpartum life.

Paternal Mental Health - PDF with information and support for partners with mental health struggles after the arrival of a new family member.